The We all The National Institutes of Health (NIH) research program has made significant strides since its national launch three years ago, providing unprecedented access to an extensive and diverse database for health research, reports Andrea H. Ramirez, MD, MS, We all Senior Advisor and Colleagues in the Journal of the American Medical Association.
More than 386,000 adults have agreed to be part of the initiative, with 278,000 adults having completed all major first steps of the program, including taking surveys, accessing electronic health records and sharing biosamples. The program attaches great importance to the inclusion of different population groups. As a result, more than 80% of the participants come from communities that have historically been underrepresented in biomedical research, which is what the We all according to Ramirez, one of the largest and most diverse of its kind.
We all aims to advance individualized health care by welcoming 1 million or more people in the United States who agree to share data and biosamples for a wide range of research studies.
At the onset of the COVID-19 pandemic, the program obtained information from attendees through online surveys, assessed early case detections, and temporarily paused personal registration activities to protect attendees and staff. The program has resumed these efforts, expanding the opportunities for participants to provide biosamples in a variety of ways, through saliva kits by mail and through partnerships with local laboratories and blood banks.
In November 2020, participants began receiving genetic information, including genetic ancestry and traits. The program will provide information on hereditary disease risks and drug-gene interactions over the next year.
More information is available at ResearchAllofUs.org.
Modifications made by Michael Causey